Search
Accessibility

Text Size: A A

AUTISTIC SPECTRUM DISORDERS (ASD) - HEALTH

 

AUTISTIC SPECTRUM DISORDERS (ASD) - HEALTH 

Devon Autism and ADHD Team

Team Duty Phone: 07890 586754
Devon County Council Autism Team (Specialist) – 01392 283000 
 

For Autism-related information. Only people with a diagnosis of Autism can use the service. Accessed through GP, IATT jamesmartyn@nhs.net – email contact for a family and friends group in Exeter

Devon Partnership NHS Trust website

Dimensions for Living – Basic Pack & Autism Alert card

 

LEARNING DISABILITY – HEALTH

Community Learning Disability Health Team (IATT) - Devon Partnership NHS Trust website

Speech & language therapy Teignbridge & Torbay: 01392 384769 / dpn-tr.HealthReferral@nhs.net
South Hams & West Devon: 01392 385103 /
dpn-tr.iattwest@nhs.net
(See also Intensive assessment & treatment teams)

Learning Disability Service Adults NHS Clinical commissioning group Windsor House, Plymouth PL6 5UF – Tel 01752 398754, Westbourne – 0845 1558077

NHS Primary Care Liaison Team – Kate Welsh -Intensive Assessment and Treatment Teams (IATTs)
Exeter & East : Exeter – 01392 208373, Honiton 01392 385878
North & Mid: Barnstaple / Tiverton 01392 383000
South & Torbay: Newton Abbot 01392 388338, Torquay 01392 388315 West: Totnes 01392 385103

IATTS support adults with LD who are experiencing or causing in others high levels of distress. IATTs seek to work with other teams in the Devon Health and Social Care Partnership for people with learning disabilities (including those with profound intellectual and multiple disabilities) and the systems that surround them, for example family members and carers. IATTs are multi-disciplinary teams including Psychiatry, Psychology, Occupational Therapy, Speech and Language Therapy, Physiotherapy, Registered Nurses (specifically for learning disability) supported by a range of team assistants. IATTs aim to:

•Enable and support people to remain in their homes wherever possible through bespoke assessment, interventions and regular evaluation
•Ensure person-centred approach in the delivery of services
•Contribute to the education of team members and providers of care in order to increase the choices available to people with a learning disability
•Prevent placement breakdown and prevent out of county hospital placements where possible
•Only use psychiatric inpatient admissions when clinically indicated and most appropriate option to treat presenting need
•Reduce hospital admission time by contributing actively to discharge planning and aftercare as per Care Programme Approach (CPA)
•Support people, services and their families in their delivery of health-related interventions for people with a learning disability who are experiencing or causing in others high levels of distress
•Work proactively with our Primary Care liaison colleagues, District General Hospital liaison colleagues and commissioning colleagues to deliver a timely and seamless service.

IATTs are not a crisis intervention service and are not expected to be a replacement for these. Mental health, physical or social care crisis should be dealt with through universal services. However, IATTs will support and advise those services offering guidance where appropriate.

 

Dentist – Special Care Service 03330 063 300

Also emergency advice line

 

LD Epilepsy helpline – 01494601400

 

Epilepsy Action Coffee group

01291 621 478/ 07841 416966 Mark Mcdaid Meets last Weds of month at Café Rouge Exeter, 7.30-9.00

 

LD Liaison Nurse RD&E

01392 402237
Primary Care LD liaison nurses (basic pack)

 

PALS – patient advice & liaison service

0300 123 1672 (NEW Devon)
01803 652 578 (S Devon)

Advice re help with health costs, including travel Hospital passports for people with LD – liaison nurses

 

Physiotherapy

01392 385878 or heather.bewick@nhs.net or Mobile 07876748734
Heather Bewick Lead Physiotherapist for Exeter, East and Mid Devon Adult Community Learning Disability Team,
Intensive, Assessment and Treatment Team, St Michaels, Orchard Way, Honiton, Devon EX14 1HU
Sit Well Sleep Well Live Well Benefit for People Who Use Our Services

  • Maintain symmetrical body shape and reduce the need for surgical intervention

  • Improve the ability of taking part in daily life - physically, mentally and socially.

  • Prevent deterioration in posture

  • Prevent pressure sores.

  • Prevention of pain

  • Ease of communication, eating/drinking, breathing and sleeping.

  • Freedom of movement and independence

  • Improved quality of life generally

  • Person, Family and Carer-centred.

     

 

LEARNING DISABILITY - SOCIAL CARE

Exeter Community Learning Disability Team - – 01392 383000 Franklyn House, Franklyn Drive, EX2 4HS
Social Care Management teams LD: East: Honiton 01392 385878 – Mark Gierke LD lead Exeter: 01392 208373

 

PARENT CARERS/YOUNG CARERS RESOURCES

SEND, LD AND AUTISM
(The following information relates to Children)

Devon’s Local Offer for SEND information on education, health and social care services and how to access them for children and young people with Special Educational Needs and Disabilities from birth to 25 

 

Care – Single Point of Access

(SPA) Tel 0330 024 5321
The Children with Disabilities Service provides assessment, support and advice for all children who have a diagnosed disability. The service consists of social workers and community care workers who work across Devon.
We aim to provide children and their families with the opportunity to have their needs assessed – through a social work assessment and/or Resource Allocation Scheme (RAS) – in order to determine the most effective and appropriate level of support.
Access to the Children with Disabilities Team is currently through the Single Point of Access (SPA) and both parents and professionals can refer to the SPA, if they think they are entitled to an assessment or would like more information on the services and support they can receive.

 

Pinpoint

A searchable database of activities, services and support groups in Devon. Search by keyword and/or area (NB The following information has been taken from DISCplus information sheet, who have issued a disclaimer as the information is provided by the organisations themselves. No vetting or DBS checks have been carried out by Devon County Council)

 

Devon Information, Advice and Support Service (DIAS)

01392 383080 email: devonias@devon.gov.uk
Provides children and young people from 0-25 who have Special Educational Needs or Disabilities, and their parents or carers, with legally based and easily accessible information about Education, Health and Social Care. A free, confidential and impartial service which is funded by Devon County Council 


Devon Parent Carers Voice (DPCV)

07975 506069 or 07794 233249 email: mail@dpcv.org.uk 
A charity run by parent carers, for parent carers of children or young people aged 0-25 with additional needs. A chance to meet with others to share ideas, keep up-to-date with the latest legislation and feed back into the Devon Health, Social Care and Education sectors through forums and events 

 

Quids for Kids (Q4K)

0300 5000 404 www.cabdevon.org.uk
This service is funded by Devon County Council and delivered by the Citizens Advice Bureau. You can call for a free entitlement check and confidential advice.

 

Devon Carers

03456 434 435 
A free information, advice and support service for carers, also carry out Carers Assessments for parent carers. Regular newsletter online and also run Carewise – a support service for young carers, providing trips and drop-ins at various centres throughout Devon. 

 

Devon Autism Alert Card

07421 778809 or email: autismcard@dimensionsforliving.org for an application form.
A free card for people aged over 11 with an autism diagnosis. The card can be useful in emergency situations. The holders name and unique reference number are embossed on it. Apply online.

 

The National Autistic Society (NAS)

Autism helpline: 0808 800 4104 open Monday-Thursday 10am-4pm, Friday 9am-3pm.
The NAS have lots of useful resources on their website including; ‘After your child’s diagnosis’ 

 

Parent to Parent service

A confidential telephone support service provided by trained volunteers from their own homes: 0808 800 4106.

 

Autism Education Trust (AET)

The AET supports effective education practice. Online they have advice on choosing an ASC friendly school, how parents and schools can work together and strategies everyone can use for supporting children with ASC. The website also has a useful section on receiving and understanding an ASC diagnosis 

 

Sensory Integration Network

0118 324 1588 
The SI Network is free to join and provides members with up to date information and breaking news about the developments in Sensory Integration theory, practice and research. 

 

BIS-net

01392 813028. 07715068494. Sam.h@cedaonline.org.uk
BIS-net is part of the Charity organisation CEDA and provides several services for parents and carers of any individual with behaviour support needs, including those on the Autistic Spectrum. There are parent/carer workshops running throughout the year, as well direct services for parents in the form of behavioural support for challenging or aggressive situations in the home, family therapy and support for developing an individual’s social and emotional abilities using a programme called RDI [Relationship Development Intervention.] 

 

South West Autism CIC

07580 225057/07582 608641 gmccullagh@sky.com 
A not-for-profit Community Interest Company running a number of support groups for families and children with an autistic spectrum disorder (firm diagnosis not needed). South West Autism Support Services provide a range of services including; training, parent support, sibling support and enabling.

 

Appcessible

A search facility to find the best and most useful apps for all Apple and Android devices for all types of additional needs.

 

Cygnet and Early Bird Courses

Training courses for parents of children with ASC Early Bird (2-5 years) and Cygnet (5-7 years). Early Bird is run in Exeter, Cygnet is run regularly at venues across Devon. Contact the centre where your child received a diagnosis for information on how to book onto courses.

 

DISCplus

DISCplus Information Co-ordinators Identify grant sources, specialist activities, equipment and any other general enquiries relating to children with additional needs. They also produce a newsletter 3 times a year http:// devon.integratedchildrensservices.co.uk/ (click on the newsletter icon on the bottom left of the screen for the latest edition). If you have a query or would like to receive the newsletter on a regular basis contact either; Amanda (Northern Devon) amanda.smithson@devon.gov.uk or Kris (Southern Devon) kristine.taylor@devon.gov.uk.
DISCplus are now on Facebook, like the DISCplus page for regular updates on all things related to children with additional needs.

 

Local Autism Support groups:

North Devon Forum for Autistic Spectrum conditions and ADHD

07923 481332, email: info@ndfautism.co.uk 
A parent/carer led support group for parents, carers and people with ASC/ADHD, although diagnosis is not essential. Membership is free and you will receive a regular newsletter, access to events and use of the free specialist ASC library.

 

POD Youth Group

janey.king@nas.org.uk 07901 643415
A Saturday group, based in Bideford, for everyone aged 11-25 with autism related needs. 

 

Auchid

info@auchid.co.uk 07985 037624
A parent-to-parent support group. Auchid hold fortnightly coffee mornings in Exmouth and Tiverton as well as monthly evening meetings in Exeter and Exmouth. Everyone is welcome and attendance is free with no registration necessary. All venues are child friendly. 

 

SOCOPS Social Opportunities

07518 152267 email: socopsclub@hotmail.co.uk 
(SOCOPS) is a registered charity providing support for children from 8-23 years of age with an Autistic Spectrum Condition and their families, a firm diagnosis isn't always needed. They run 2 clubs, SOCOPS (8-15 year olds plus siblings/ families) in Countess Wear, Exeter. SOCOPS Plus in various locations in and around Exeter for those 15-23 years old, working on independent skills. Being a charity they keep contributions to a minimum. They have a hardship policy if this is ever an issue. 

 

Okehampton ADHD and ASC Support Group

familysupport@communitylinks-sw.co.uk 07808 523111
A support group for parents and carers of school aged children. The group meets once a month at the Ockment Centre and is there for families in whatever stage of the journey they are at, from their first inklings that their child may be affected by one of these conditions to living with it in the long term.

 

Asperations

admin@asperations.co.uk 07719 414729
A weekly, term time group for children with Autism, Aspergers or ADHD aged 5 to 18 years and their families. Covers the Teignbridge, Torbay and South Hams areas. 

 

NAS Exeter and East Devon ASC Parents and Supporters Group

exeter@nas.org.uk or 07804 493534
A monthly parent support group for mutual support, the group has bi-monthly speakers.